*NEW AT NOFAS* *July 23, 2018*
*You're Invited! NOFAS FASD Month/Day Video Campaign!
Calling all members of the FASD community! Submit your own original video
on FASD prevention or awareness, and NOFAS will feature it in September for
FASD Awareness Month! NOFAS is particularly interested in two types of
*1. Short Videos: Awareness Message* You can submit a short video with a
brief FASD awareness message. This can be as short as a few seconds or as
long as a couple minutes. NOFAS will post these videos on our social media
channels every day throughout September.
*2. Longer, PSA-style Video* You can submit a PSA-style video, about 2-5
minutes. The goal is to raise awareness about the risks associated with
prenatal alcohol exposure and to prevent the occurrence of FASD. Be
creative! NOFAS will select a winner for the best PSA. [image: submit_video]
*Get detailed information here
*NOFAS Presents at CDC Meeting for FASD Prevention Project
NOFAS leadership is presenting at the 2018 Grantee Meeting in Atlanta, Georgia for CDC’s Collaborative for Alcohol-Free Pregnancy, an FASD prevention project. CDC works with FASD Practice and Implementation Centers (PICs) and National Partners, to prevent FASDs by improving healthcare practice, education, and awareness among healthcare professionals. NOFAS is proud to be a National Partner of this project. In 2014, CDC funded national partners to strengthen strategic partnerships with key national medical societies, professional organizations, and constituent groups.
[image: CDC project logo]
*Little Girl's Unicorn Wish Comes True
“With the help of the Make-A-Wish organization, 7-year old Shelby was granted her longtime wish to see a unicorn. “I always wanted to see one,” the Lake Geneva girl said through tears of joy. “I finally got to see one.” Shelby, a second-grader, is the adopted daughter of Steve and Sarah Woods of Lake Geneva. She was born with fetal alcohol syndrome and several other
conditions that make life hard for the little girl.” - *Lake Geneva Regional News* [image: unicorn]
*Girl with FASD Receives Four Medals at the Special Olympics
“Crystal Fougner received four medals at the Special Olympics national games. Crystal was born with fetal alcohol syndrome and a cleft palate. After seven years of moving between foster homes, she was adopted in 2001. Crystal had wanted to compete in Special Olympics while in foster care and her adoptive mother was already active with the organization… Crystal is a
four-time national champion. Her experience with the National Games began twelve years ago.”
- *Amery Free Press* [image: special olympics crystal]
*Professor Honored for Work on Prenatal Alcohol Exposure
“San Diego State University neuropsychologist Sarah Mattson was recognized by the Fetal Alcohol Spectrum Disorders Study Group for her outstanding research contributions to the field. During its annual meeting, the group, a specialized affiliate of the broader Research Society on Alcoholism, gave Mattson its highest honor for lifetime achievement, the Henry L. Rosett
Award. Mattson has been involved with the Fetal Alcohol Spectrum Disorders Study Group since the early 1990s." - *SDSU NewsCenter* [image: award mattson 2]
*Pregnant Women Face Stigma Over Opioid Addiction
“April Barnes, Director of Admissions at a rehab center, said seeking treatment is hard for opioid-addicted women because of fears they would lose their child... She hopes to break down the stigma about pregnant women and their opioid addiction... The opioid epidemic continues to have a strong grip on pregnant women and their infants across the country.”- *News Channel Five* [image: stigma opioid]
*Moderate Developmental Alcohol Exposure Reduces Repetitive Alternation In A Zebrafish Model Of Fetal Alcohol Spectrum Disorders.
This preprint study finds that, “The damaging effects of alcohol on a developing fetus are well known and cause a range of conditions known as fetal alcohol spectrum disorder (FASD). High levels of alcohol exposure lead to physical deformity and severe cognitive deficits, but more moderate exposure leads to a range of subtle cognitive effects such as reduced social behavior, higher propensity to develop addictions, and reduced spatial working memory.” - *bioRxiv*
*STUDIES AND SURVEYS*
*NEW: The DiG FASD Study is Enrolling Adults and Children with Prenatal
For more information, please visit https://digfasd.org or call 844-378-0002.
*Enroll Your Children in UCLA Brain MRI Study of Children with FASD
For more information, please contact: RQLy@mednet.ucla.edu or 310-206-9012.
*Registry Connects Researchers to Families and Individuals Living with FASD*
FASD Training Website
Online Video Training Series on FASD from Triumph Today
*A Guide to FASD Resources - National Association of Social Workers
*NIAAA Alcohol Treatment Navigator
*AAP: FASD PediaLink Course
*Webinars and Web Campaigns*
*NEW: University of New Brunswick FASD Intervention Support Certificate
“The FASD course provides students with highly specialized training and as
a course participant; you will gain a solid understanding of the theory and
principles underlying FASD world. The program is delivered through online
teaching, web-based discussions, quizzes, online workshops (via Skype) and
evaluations. The guiding design principle of this blended model is to
provide an instructional sound, flexible, user-friendly teaching and
learning solutions. The FASD Course will be starting on September 24, 2018.”
*Watch NOFAS Recorded Webinar:
FASD Advocacy: Setting the Stage for 2018
Watch this webinar hosted by Cameron Koob, NOFAS Public Policy
Coordinator. Participants in this webinar will learn: The most efficient
way to get information to contact their elected representatives and their
staff, How to utilize the 2018 midterm campaign media environment to their
advantage, and How to execute action alerts and mobilize a constituency.
*Please send webinars for possible inclusion to email@example.com
*NCE Summer Leadership Institute
July 23-25, 2018. Philadelphia, Pennsylvania
“The criminal justice system is not prepared to meet the needs of people with I/DD as victims, suspects, or defendants. What more can we be doing to create positive change? Weigh in on these topics and more at the 2018 Summer Leadership Institute.”
*Finding Health: The Intersection of Disability and Nutrition
July 28-29, 2018. Aurora, Colorado
“THINK+change, The Arc of Aurora's social enterprise, is again hosting Finding Health. This year's focus is on the Intersection between Disability and Nutrition, including hemp/cannabis supplements.”
*Atlanta Training on FASD, Sponsored by Atlanta Legal Aid
Septemebr 18, 2018. Atlanta, Georgia
Speakers include Larry Burd, Douglas Waite, William Edwards, and Paul Connor. The training will be moderated by Tom Donaldson of NOFAS. Melissa Jacobus Cook, parent advocate in Georgia, and William Edwards, Los Angeles county public defender, have organized this training. If you are able to attend, register early as space is limited.
*MOFAS’ 7th Annual FASD Matters Conference: The Brain
November 8-9, 2018. Brooklyn Park, Minnesota.
Arrive early on November 7, 2018 for an intensive learning experience for their *Pre-Conference Institute: FASD & the Brain on Trial
This pre-conference session will focus on the intersection of FASD, the criminal justice system, and the courts. Presenters will cover a diverse range of topics designed to educate attendees on implications for the courts when working with people on the fetal alcohol spectrum.
*Connect with NOFAS*
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Please send suggested items for the roundup (events, articles, research) to
The content of the NOFAS Weekly Roundup does not necessarily reflect the
official positions or views of NOFAS.
For questions about events and webinars, please contact the organizations
that are hosting the events.
The NOFAS Weekly Roundup is edited by Andy Kachor.
*Your support helps individuals and families living with FASD. Thank you!*
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EUFASD - www.eufasd.org
Alcohol News - https://alcoholweekly.blogspot.com/
CBC.ca (Canada) - *More supports needed for people with FASD, say advocates*
People diagnosed with fetal alcohol spectrum disorder (FASD) need lifelong supports, but the disorder is often misunderstood, say advocates.
PBS NewsHour - *Fetal alcohol disorders are more common than you think*
Fetal alcohol spectrum disorder, a possible result from mothers drinking during pregnancy, has flown under the radar for decades. Now new conservative estimates published in The Journal of the American Medical Association show that anywhere from 1.1 to 5 percent of the U.S. population is affected, meaning it could be more common than autism.
PBS NewsHour - *The story about drinking while pregnant that got our newsroom talking*
On tonight’s PBS NewsHour, National Correspondent Amna Nawaz reports from Minnesota on a subject often referred to as the “invisible disability:” Fetal Alcohol Spectrum Disorder, or FASD, which can occur when a mother drinks during pregnancy.
PBS NewsHour - *Why do pregnant women get confusing guidance about alcohol?*
How much alcohol can cause fetal alcohol spectrum disorder, a difficult to diagnose condition, sometimes called an "invisible disability"? Doctors don't know. While official guidelines say no amount of alcohol is safe to drink during pregnancy, women often receive mixed signals, even from their own physicians.
SDSU Newscenter (USA) - *Professor Honored for Work on Prenatal Alcohol Exposure*
SDSU neuropsychologist Sarah Mattson explores the cognitive and behavioral effects of fetal alcohol spectrum disorders.
CBC.ca (Canada) - *Man who died in Edmonton Remand Centre had FASD, should not have been in jail, says mother*
Sylvie Salomon's desperate search for her son ended with a phone call Friday morning, informing her that Maxim Baril-Blouin had died in the Edmonton Remand Centre.
Newshub (New Zealand) - *Many Kiwi mums-to-be don't stop drinking – study*
Nearly a quarter of Kiwi mothers continue to drink alcohol when they're pregnant, a new study has found.
Virtual-Strategy Magazine - *Alcohol and Pregnancy a Toxic Cocktail to
Despite ongoing debate among physicians and scientists about whether an occasional sip of wine or beer may harm a fetus, mixing pregnancy and alcohol can prove a toxic cocktail to swallow.
Health-e News (South Africa) - *Expecting moms ignore alcohol dangers*
Tshegofatso Makroti, a 30-year old mother from Ikageng township in Potchefstroom who drank alcohol regularly through five pregnancies, believes that although two of her babies were stillborn her drinking was not a problem.
LittleThings (UK) - *New Survey Shows 35% Of People Think Drinking During
Pregnancy Is Completely Healthy*
One of the most widely accepted facts about a healthy pregnancy is also one of the most widely bemoaned: You’re not supposed to drink alcohol while you’re pregnant.
THE PSYCHLOPAEDIA (Australia) - *Australia’s hidden epidemic of alcohol harm*
Drinking too much alcohol in pregnancy may have a drastic impact on babies' brain development. But too often Fetal Alcohol Spectrum Disorder (FASD) is overlooked as a cause of children's behavioural and learning issues.
NOFASGeorgia - *AAP Article: “Myth: A Diagnosis of a FASD Does Not Change
the Treatment Plan” – John Stirling, MD, FAAP*
At first blush, it might appear that there’s little help in a diagnosis of a FASD. After all, most patients don’t come to the pediatrician with a Chief Complaint of Fetal Alcohol Spectrum Disorder.
VIDEOS and MATERIALS
CanFASD - *Victimization in People with FASD*
The goal of the current paper is to explore the issue of victimization in FASD and make recommendations for improving the justice process for these individuals.
Demeter - *Mothers, Addiction and Recovery: Finding Meaning Through the Journey*
This anthology is a collection of personal accounts, research, treatment approaches and policy commentary exploring women’s experiences of mothering in the context of addiction. Individual chapters focus on a variety of addictions during pregnancy or mothering including misuse of substances, food and smartphones.
EUFASD - *European Conference on FASD 2018 (September 24-26; Berlin Germany)*
The EUFASD conferences bring together academics, educators, non-governmental organisations and charities, legislators and politicians, lawyers and individuals involved in the criminal justice system, birth and adoptive families alongside individuals who themselves have FASD; shared
learning will help promote the understanding of this disorder in Germany, Europe and internationally.
NOFASD Australia - *DEMYSTIFYING FASD IN YOUTH CONFERENCE – NSW (13th
After the success of their last FASD Training Day, the CICADA Centre NSW will host Demystifying FASD in Youth to empower GPs, paediatricians, psychiatrists, and allied and mental health professionals to develop knowledge and skills in FASD in children and adolescents.
CSUN - *FASD (Fetal Alcohol Spectrum Disorders) Network of Southern California 3-day Conference (October 25th-27th, 2018)*
To provide an understanding of the link between brain function and behaviors. A Neurobehavioral Model and approach for parents, caregivers, support workers and professionals to aid in caring for individuals with FASD and other brain based disabilities.
Alcohol Healthwatch - *Our Science, Our Stories: 2nd Australasian FASD Conference (Perth, Australia 21-22 Nov 2018)*
Our Science, Our Stories, will feature our own Claire Gyde, inspirational writer and speaker and Chairperson of FASD-CAN, along with Canada’s Dr Svetlana Popova who has led groundbreaking research to ascertain FASD rates worldwide and in Canada.
NB Adoption Support Network - *Learning about the FASD Spectrum: Information, Strategies & Personal Experi... (20 September 2018; Canada)*
Do you want to learn more about the FASD spectrum? Maybe you are waiting to adopt and foster or maybe you are raising a child on the FASD Spectrum, or are wondering if your child may be on the Spectrum?
NewFound Families of Virginia - *Fetal Alcohol Spectrum Disorder (FASD)- Increasing Awareness webinar (AUGUST 23)*
Have you been asked to accept a foster care placement or are raising a child with a diagnosis of Fetal Alcohol Spectrum Disorder (FASD)? Join us on Thursday, August 23 at 7:00 PM for our webinar, Fetal Alcohol Spectrum Disorders – Increasing Awareness.
FASD Okanagan Valley Assessment and Support Society - *“Putting it together.” (September 6-7, 2018; Canada)*
This conference brings together people from academia, clinical practice, service providers and the community.
The Halton FASD Resource Team - *Four Night FASD Training Series for Parents and Caregivers (October 9, 2018)*
The Halton FASD Resource Team is pleased to announce training for parents/caregivers and professionals currently supporting someone with diagnosed or suspected fetal alcohol spectrum disorder (FASD).
BCAdoption - *External Brains Wanted with Dr. Diane Russell (September 10th, 2018; Canada)*
In honour of FASD Awareness Day we are holding a full day workshop in partnership with the Foster Parent Support Services Society with Dr. Diane Russell where she will present her "External Brains Wanted" workshop.
InclusionBC - *8th International Conference on Fetal Alcohol Spectrum Disorder (March 6- March 9, 2019; Vancouver CANADA)*
This advanced level conference/meeting continues to bring together global experts from multiple disciplines to share international research.
University of Toronto - *Analysis of Drosophila Nervous System Development
Following a Brief Exposure to Ethanol*
Improper neuronal mapping predisposes many of the neurodevelopmental deficits that arise in patients of Fetal Alcohol Spectrum Disorders (FASD).
Neuroscience - *Activity-dependent Signaling and Epigenetic Abnormalities in Mice Exposed to Postnatal Ethanol*
Postnatal ethanol exposure has been shown to cause persistent defects in hippocampal synaptic plasticity and disrupt learning and memory processes.
bioRxiv - *Moderate developmental alcohol exposure reduces repetitive alternation in a zebrafish model of fetal alcohol spectrum disorders.*
Our data thus suggest that zebrafish may be a promising model system for studying the effects of alcohol on learning and decision-making, but also for developing treatments and interventions to reduce the negative effects of prenatal alcohol.
Early Human Development - *Prenatal alcohol consumption and infant and child behavior: Evidence from the Growing Up in New Zealand Cohort*
Alcohol consumption during pregnancy has a negative effect especially on infant temperament, even if small amounts of alcohol are consumed.
US Patent App - *Method for the diagnosis of disorders caused by fetal alcohol syndrome*
The present invention provides a method for the diagnosis of disorders caused by foetal alcohol syndrome, said method comprising the assaying of PLGF (placental growth factor).
Journal of Education, Health and Sport - *THE EFFECTS OF SENSORY INTEGRATION TECHNIQUES ON MUSCLE TONE IN CHILDREN AFTER PRENATAL EXPOSURE
The sensory integration technique exerts a beneficial effect on the normalization of muscle tone in children after prenatal exposure to alcohol.
Clinical Neurology and Neuroscience - *Clinical Implications Related to the Use of Drugs Illicit and Licit During the Pregnancy *
The use of drugs during the gestational period brings multiple consequences to the body of the mother and the fetus, of which are intrauterine growth restricted, congenital malformations, miscarriage, premature labour, premature separation of placenta, placenta previa and death Fetal.
Alcoholism: Clinical and Experimental Research - *Harm from Known Others' Drinking by Relationship Proximity to the Harmful Drinker and Gender: A Meta‐Analysis Across 10 Countries*
The experience of harm attributable to the drinking of others differs by gender. For preventing harm to women, the primary focus should be on heavy or harmful drinkers in close proximity relationships; for preventing harm to men, a broader approach is needed.
Alcohol - *Impact of moderate prenatal alcohol exposure on histaminergic neurons, histidine decarboxylase levels and histamine H2 receptors in adult rat offspring*
Moderate prenatal alcohol exposure (PAE) reduced the expression of histidine decarboxylase (HDC), the rate-limiting step in the synthesis of transmitter specific histamine, in dentate gyrus, frontal cortex and cerebellum of adult offspring, but not in the caudate nucleus, or ventral hypothalamus.
IN OTHER LANGUAGES
Göteborgs-Posten (Sweden) - *Tusentals barn skadas av alkohol varje år*
Vin, öl och sprit som dricks under graviditeten kan orsaka allvarliga fosterskador. Många barn blir till under sommaren, den årstid då vuxna dricker som mest alkohol. I år har dessutom den ovanligt varma sommaren ökat vår konsumtion, skriver bland andra Ihsan Sarman, barnläkare.
RTL Online (Germany) - *Fetales Alkoholsyndrom: Dominiques (17) Mutter hat während der Schwangerschaft Alkohol getrunken*Dominique aus London hat es im Alltag schwerer als andere 17-Jährige: Sie hat Probleme sich zu konzentrieren, mit anderen Menschen zu kommunizieren, auch Körpersprache kann die junge Frau schlecht deuten - und all das geht auf die Kappe ihrer Mutter.