December 11, 2018

Resources

Books, Manuals and Videos

Trying Differently Rather than Harder by Diane Malbin. To obtain a copy, contact FASCETS (www.fascets.org). A Ukrainian translation is available but in hard copy only.  To obtain a copy, contact Oxana Boichuk at [email protected]

The Best I Can Be: Living with Fetal Alcohol Syndrome or Effects by Liz and Jodee Kulp. To obtain a copy, contact (www.betterendings.org). Click on Resources, then on Bookstore.

Teaching Students with Fetal Alcohol Spectrum Disorder: Building Strengths, Creating Hope. Alberta. Alberta Learning. Special Programs Branch (Programming for students with special needs) To obtain a copy, go to http://education.alberta.ca/teachers/resources/fasd.aspx

FASD: Strategies Not Solutions – FASlink.org; www.faslink.org/strategies_not_solutions.pdf. A resource to educate caregivers and the community in managing the behaviors associated with Fetal Alcohol Syndrome

Our FAScinating Journey, Chapters 2,3: The Brain; Teresa Kellerman and Jodee Kulp. To obtain a copy, contact (www.betterendings.org). Click on Resources, then on Bookstore.

A Child for Life DVD, Produced by NOFAS and NOFAS-UK. The Child for Life video is a 22 minute educational film explaining Fetal Alcohol Syndrome and including interviews with experts, families and children affected by FASD. Available from NOFAS; $35.00 plus shipping.

Conferences

The Fifth European Conference on FASD will be held September 24-26, 2018 in Berlin. The EUFASD conference brings together academics, educators, non-governmental organizations and charities, legislators and politicians, lawyers and individuals involved with the criminal justice system, birth and adoptive families alongside individuals who themselves have FASD. For up to date information, contact the European FASD Alliance (www.eufasd.org)

Other Resources

Ukrainian Links

Omni-Net Ukraine Birth Defects Prevention Program Mission: Amelioration, Prevention and Genetic Counseling concerning Birth Defects, Genetic Disorders, Congenital Malformations, Anomalies and Developmental Disorders.

European Links

European Alcohol Policy Alliance The European Alcohol Policy Alliance is a network of some 50 voluntary and non governmental organisations working on the prevention and reduction of alcohol related harm across 20 countries in Europe. European Birth Mother Support NetworkEuropean Birth Mother Support Network The European Birth Mother Support Network is a network of women who drank alcohol during pregnancy and may have a child or children with FASDs. It is a place where mothers can share their experiences and support each other. The organization’s goal is to educate and to increase understanding and support for birth mothers and families in Europe. FAS World Deutschland FAS World Deutschland. Information is provided in both German and English. National Organisation on Fetal Alcohol Syndrome- UK The National Organisation for Foetal Alcohol Syndrome – UK (NOFAS-UK) is dedicated to supporting people affected by foetal alcohol spectrum disorders (FASD) and their families and communities. It promotes education for professionals and public awareness of the risks of alcohol consumption during pregnancy. Fas Aware- UK Fetal Alcohol Syndrome Aware UK: This website has been designed to raise awareness, give informed choice, provide information and support for people affected by / interested in FAS. There is a vast range of resources available for you to download including educational resources, marketing material and documentation written by Professionals. A VOLUNTARY GROUP. Prevention of FASD in Poland (PDF) The State Agency for Prevention of Alcohol Related Problems. Krzysztof Górski. Family and Youth Department For information about FASD in Russian and English Center on Child Abuse and Neglect Developmental and Behavioral Pediatrics The University of Oklahoma Health Sciences Center The website for the public is http://netfas.net/ The website for professionals is http://netfas.net/pro/

North American Links

National Organization on Fetal Alcohol Syndrome The National Organization on Fetal Alcohol Syndrome is dedicated to eliminating birth defects caused by alcohol consumption during pregnancy and to improving the quality of life for those affected individuals and families. The website includes a listing by state of community services, prevention programs, diagnosis centers and treatment services – and much, much more. FASCETS Services available through FASCETS are designed to increase understanding, build on strengths, expand options for developing effective parenting and professional techniques, enhance existing programs and support the development of new programs. Kentucky’s FASD website “We are here to support parents, teachers, doctors, social workers, high school students, nurses, therapists, corrections officers – people who are doing the best they can while missing an important piece of information about the role of invisible brain differences on day-to-day functioning.” Braided Cord This website is dedicated to the millions of children whose brain destiny was determined before they took a first breath. Better Endings We provide hope for children, teens, and adults living, laughing, learning and loving through the challenges of alcohol exposure before birth — fetal alcohol spectrum disorders (FASD). FAS world This website endeavours to share current information about FASD, helping parents and other caregivers who are dealing with FASD issues, and providing topical news stories and announcements about conferences and workshops on FASD around the world. FAS Community Resource Center Information about Fetal Alcohol Syndrome (FAS) and Fetal Alcohol Spectrum Disorders (FASD) Headquarters: Tucson, Arizona. Supported by Fasstar Enterprises